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Global Rheumatology Registries and Cohorts

Research Output: Contribution to journal Review article Peer-review

Publication Information

Output type

Research Output: Contribution to journal Review article Peer-review

Original language

English

Pages from-to (Number of pages)

Pages 297-311 (15 pages)

Journal (Volume, Issue Number)

Rheumatic Disease Clinics of North America (Volume 52, Issue 2)

Publication milestones

  • Accepted/In press - 2026
  • Published - 05/2026

Publication status

Published - 05/2026

ISSN

0889-857X

Publication IDs

  • Scopus: 105035620364

Abstract

Global rheumatology registries and cohorts have been developed over the past 40 years. They have allowed for a better description of the epidemiology of systemic autoimmune diseases, as well as the proposal of new classification criteria, outcome measures, and disease activity states. Although efforts have been made to increase global representation, including researchers and patients from high-income countries, more work still remains to be done to achieve truly global coverage. The examples described in this article might serve as the path to achieve such goal.