Global Rheumatology Registries and Cohorts
- ,
- Guillermo J. Pons-Estel,
- Graciela S. Alarcón
- ,
- ,
- Hospital Guillermo Almenara Irigoyen,
- Grupo Oroño. Centro Regional de Enfermedades Autoinmunes y Reumáticas (GO-CREAR),
- Universidad Peruana Cayetano Heredia,
- University of Alabama at Birmingham
Research Output: Contribution to journal Review article Peer-review
Publication Information
Output type
Research Output: Contribution to journal Review article Peer-review
Original language
EnglishPages from-to (Number of pages)
Pages 297-311 (15 pages)Journal (Volume, Issue Number)
Rheumatic Disease Clinics of North America (Volume 52, Issue 2)Publication milestones
- Accepted/In press - 2026
- Published - 05/2026
Publication status
Published - 05/2026
ISSN
0889-857XPublication IDs
- Scopus: 105035620364
Abstract
Global rheumatology registries and cohorts have been developed over the past 40 years. They have allowed for a better description of the epidemiology of systemic autoimmune diseases, as well as the proposal of new classification criteria, outcome measures, and disease activity states. Although efforts have been made to increase global representation, including researchers and patients from high-income countries, more work still remains to be done to achieve truly global coverage. The examples described in this article might serve as the path to achieve such goal.
